Rosie slept well and had a good morning. Unfortunately, her central line came off about an inch from her site, had to go for an x-ray. The line is still on the right area so they continued her chemo for now but she will need another surgery for a new central line again. At least, we are on the right place for it.
She received her first set of 2 doses of chemo today for cycle #4. It includes 2 drugs: Carboplatin & Thiotepa. The latter drug goes out through the pores via sweat glands so she requires 4 bed baths and mouth care per day until 24 hours after her last dose. They expect her immune system to drop by Friday on which she start to be kept on reverse isolation and low bacteria diet.
February 22, 2012
Rosie has received 2 days of intensive chemo drugs for cycle 4. No further chemo drugs until her next cycle, hooray! Currently, she is doing fine being playful but slightly weak. She will have her Stem Cell transplant on Friday to aid with her recovery.
She will have her surgery tomorrow for her fourth central line replacement which usually takes them minutes to do, she would require fasting from midnight.
Although, she is not officially on protective isolation until Friday, we were placed in one of the special rooms that has Laminar Air Flow system that continually filters the air. So there is this fan blowing against the head of the bed and the air pressure in the room is different from the outside. With her immunity dropping, I lean on God to continually protect and heal Rosie and for me to be healthy and be allowed to continue to care for her.
If all goes well, we could be home during March Break until her next cycle. Thanks for your interest and care in reading my long updates. God Bless!
Feb 23, 2012
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| Rosie showing off her bravery beads collection. |
You get a bead for each procedures she goes through (blood test, scans, x-ray, chemo, transfusion, surgeries, etc.) and wow beads for special times. And she just became a patient at the end of November. She's our brave hero.
February 24, 2012
Rosie stayed late last night since she had to fast this morning. She slept most of the morning and had her surgery after 3 pm. The surgery went well. She was so drowsy most of the evening post surgery so she didn't eat except for a glass of juice. She started to have some fever and nausea & vomiting tonight. They started her on antibiotics and anti-nausea meds. She will have a Stem Cell Transplant tomorrow which is like a blood transfusion containing her own WBC.
Rosie has been weak today with low appetite. She received her Stem Cell Transplant today and it went well, no side effects. If she can't eat much, they will start her on TPN which is like Boost/Ensure going through her central line. She is well looked after. We also transferred to a clean isolation room. It will be our home for the next few weeks.
February 25, 2012
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| BMT Isolation Room |
We were told that they only started last year for this unit to allow parents to spend the night with their children. Each room has a microphone but no camera for monitoring. We are glad to be able to stay with her. I can't imagine how the parents felt when they had to leave their child sick and alone.
We have set-up a clean area on the floor for some play time. They gave us the foam puzzle mats and we placed a blanket over it.
February 27, 2012
Rosie has lost most of her appetite so they have been giving her TPN and lipids through her IV. Otherwise, she has happy moments playing with her toys.
This was taken on the day she was receiving her red cells transfusion, TPN, lipids, and hydration all at the same time.
February 29, 2012
Rosie has been about the same. Still has poor intake but receiving nourishment through her central line. She has some mild discomforts but manages to be playful and cheerful. Her blood cells and platelets are lowering down which is expected as well. They will transfuse her when it goes too low.
We are getting to know our neighbours, and their stories are really sad and their kids are in worse situation than us. They are very positive and strong. I become speechless around them.
March 2, 2012
10 days after her Intensive Chemo - Rosie's doctors are happy and impressed with her minimal symptoms, returned appetite, and increasing WBC 0.1 (which was less than 0 yesterday). She had some dry throat, nausea, vomiting, sore in the diaper area and received transfusion. She didn't had mouth sores and severe rashes they expected in most cases. Majority of the day, she is happy, comfortable, and playing. God has answered our prayers. Thank you so much for your continuous dedication in praying for her.
March 4, 2012
Rosie's WBC today is at 0.5 and as soon as she makes her own Neutrophils (T-Cells), she can get out of isolation and be allowed out of her room. Hooray! God is great!
March 5, 2012
Rosie's WBC jumped up to 2.7 and her neutrophil at 1.21. So we're out of isolation. She is also eating and drinking well that she only needs her IV hydration at night. They are testing her organ functions again as baseline for her next cycle to start after Feb 20th. We're both excited to come home soon for March Break!
March 6, 2012
Rosemary's doing so well with WBC at 7.7 and neutrophils at 3.31 that we are being sent home.
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