~If
you look closely, you will notice the orange tube (external ventricular
drain) on her head that helps drain the cerebral fluid. They are slowly
adjusting it to allow her brain to drain it on her own. Dr says it
50/50 chance of her getting
a permanent shunt that will be connected from her brain and drain to
her stomach. God I trust and lean on you, I know that you are always
there guiding the doctors to ensure Rosemary gets the right treatments
to live a happy and healthy life.
~Awaiting the final pathology test result today. Jeffrey and I are ready to what God has plan for us. We know any challenges we face ahead is better than what could have happened last Friday. Thank you Lord for showing us Rosemary daily health improvements. Its nice to see her smile and laugh again.
~"No Doctor! Mom No Doctor!" After being poked twice a day for blood work and Hourly Blood Pressure and Temperature, I don't blame her.
December 4, 2011
~Fasting this morning awaiting for CT Scan so they can remove her
External Ventricular Drain (shunt). She's pointing to the Dora movie.
~Rosie hears the other babies crying from the other patient room. "Mom, Baby Crying, Oh, Poor Baby. Baby no like doctors." She is so caring of others even with her own ordeals. I love her so much.
~They had her fast all day and end up postponing CT Scan tomorrow. I understand that anaesthesist is needed for 2 transplant surgeries, wish they let us know sooner instead of having Rosie fast over 18 hrs.
December 5, 2011
~ Lord teach me patience as we wait for CT Scan and Pathology report.
~ CT Scan done. Drain from the brain removed and a visit from dad. Hooray! Thank you God. Pathology & oncology meeting tomorrow. Lord, please guide the medical team to do the best and safest treatment plan for our daughter.
December 6, 2011
We had a better night. She only need to be assessed every 4 hours instead of every 2 hours now that the drain is out. I forgot to mention that she hasn't needed any pain medication and is eating well, tummy problems are also gone. God is making Rosie feel better each day. God is our everlasting healer. Lord, thank you for hearing our prayers and for helping Rosie. Our meeting will be at 1pm today with the pathology/oncology medical team. Thanks for your ongoing prayers.
December 7, 2011
~ Some good news: We get to go home this weekend for a week before she starts her treatment. The first treatment will be aimed early so we can be home for the holiday break.
December 8, 2011
~ Her drain incision had to be restitched last night, had a late sleep. Today is full of appointments: kindey scan, eye exam and blood works. Were both tired and a bit cranky. We look forward to coming home tomorrow.
~ She's enjoying the play room so much. I can't convince her to go back to her room. She has so much energy while I'm just exhausted.
December 9, 2011
Going home day! Hooray!
December 10, 2011
December 15, 2011
We are booked for surgery tomorrow for her Central Line and Spinal Tap. So she is more likely to start her Chemo this Sunday as booked. Appreciate your continuous prayers.
~Awaiting the final pathology test result today. Jeffrey and I are ready to what God has plan for us. We know any challenges we face ahead is better than what could have happened last Friday. Thank you Lord for showing us Rosemary daily health improvements. Its nice to see her smile and laugh again.
~"No Doctor! Mom No Doctor!" After being poked twice a day for blood work and Hourly Blood Pressure and Temperature, I don't blame her.
December 4, 2011
~Rosie hears the other babies crying from the other patient room. "Mom, Baby Crying, Oh, Poor Baby. Baby no like doctors." She is so caring of others even with her own ordeals. I love her so much.
~They had her fast all day and end up postponing CT Scan tomorrow. I understand that anaesthesist is needed for 2 transplant surgeries, wish they let us know sooner instead of having Rosie fast over 18 hrs.
December 5, 2011
 |
| I scream, you scream for ice cream |
 |
| Incision healing well |
~ Lord teach me patience as we wait for CT Scan and Pathology report.
~ CT Scan done. Drain from the brain removed and a visit from dad. Hooray! Thank you God. Pathology & oncology meeting tomorrow. Lord, please guide the medical team to do the best and safest treatment plan for our daughter.
December 6, 2011
We had a better night. She only need to be assessed every 4 hours instead of every 2 hours now that the drain is out. I forgot to mention that she hasn't needed any pain medication and is eating well, tummy problems are also gone. God is making Rosie feel better each day. God is our everlasting healer. Lord, thank you for hearing our prayers and for helping Rosie. Our meeting will be at 1pm today with the pathology/oncology medical team. Thanks for your ongoing prayers.
Also see Highlight # 2 - Her Diagnosis
December 7, 2011
 |
| First time to go to the gift shop. She chose a ball, sticker, and kinder surprise. |
~ Some good news: We get to go home this weekend for a week before she starts her treatment. The first treatment will be aimed early so we can be home for the holiday break.
 |
| A visit from the hospital dog. Rosemary fed him a cookie. What a brave girl! |
December 8, 2011
~ Her drain incision had to be restitched last night, had a late sleep. Today is full of appointments: kindey scan, eye exam and blood works. Were both tired and a bit cranky. We look forward to coming home tomorrow.
~ She's enjoying the play room so much. I can't convince her to go back to her room. She has so much energy while I'm just exhausted.
December 9, 2011
December 10, 2011
Spending a busy day with church and family before the long treatments.
December 11, 2011
Spent the morning for family photos and some window shopping. Rosemary
enjoyed the play area too.
She's talking more and walking better each
day. Putting the Christmas tree together as a family was wonderful.
December 14, 2011
Awaiting for Rosie's appointment for her central venous catheter
insertion and spinal tap. They said she's on the waiting list. Which
means her chemo might get delayed. I do hope we can be home for the
holidays.
December 15, 2011
We are booked for surgery tomorrow for her Central Line and Spinal Tap. So she is more likely to start her Chemo this Sunday as booked. Appreciate your continuous prayers.
No comments:
Post a Comment
Thanks for sharing your comments