Desmoplastic Nodular Medulloblastoma

Rosie, our daughter at age 2 1/2 is diagnosed with Desmoplastic Nodular Medullosblastoma.  The medulloblastoma has been defined as a "malignant, invasive embryonal tumor of the cerebellum with preferential manifestation in children, predominantly neuronal differentiation, and inherent tendency to metastasize via CSF [cerebrospinal fluid] pathways."  This subtype of Medullosblastoma has better outcome with treatments so the doctors find this favourable.


The usual protocol treatment for this form of Brain Cancer are surgery, Chemotherapy, and Radiation Therapy.  Because Rosie is under the age of 3 and the cancer type is favourable, she won't be requiring Radiation Therapy (Thank you, God!).  She already had her surgery where they removed all her tumour.   The neurosurgeon is satisfied with her recovery and states that the surgery was "perfect".  MRI showing no traces of tumour and bleeding. (Lord, we praise thee!)




Because the type of tumour she has is malignant and invasive, Chemotherapy is required to kill any cancer cells.  The treatment will consist of 3 cycles of 3 chemo drugs, each running for 3 weeks and 3 cycles of 2 intensive chemo drugs and Autologous Stem Cell transplants, each running for 4 weeks.  That's a total of 21 weeks.  There will be significant side effects, they will be monitored closely.   The next two weeks will be used to ensure Rosie has fully recovered from her brain surgery and preparations will be done for her Chemotherapy.  We are  blessed to be at one of the best hospital for treating kids cancer.


We have a long journey ahead of us.  Thank you for everyone who is helping us go through this battle by your prayers and supportive care.


Lord, Thank you for healing Rosie from her brain tumour surgery. Please continue to heal Rosie completely from cancer and be free of complications from Chemotherapy and treatments. Please give us strength, faith and resources to endure our trials ahead.


3 John 2 - “Dear friend, I pray that you may enjoy good health and that all may go well with you, even as your soul is getting along”.


Jeremiah 30:17 - “ But I will restore you to health and heal your wounds declares the LORD.”

For more details and pictures, See Mom's Journal - Brain Surgery Recovery