The Start of Mom's Journal

Novermber 24, 2011
Please pray for my 2 year old daughter, Rosie. She hasn't been feeling good for over 1 month. Spends the day lying down and has been not eating and drinking well. She lost over 10 lbs.

November 25, 2011

At Sickkids. Rosie had a blood test and now getting an IV. She's too weak to fight it.

Rosie is in critical care please pray for a successful surgery.

Incision to remove brain pressure and for External Ventricular Drain

November 26, 2011

Incision where they took the tumour out

Thank you Lord for saving our precious Rosie, for putting us here at SickKids Hospital in time and for the successful surgery. Thank you friends and family for your prayers. She is recovering well from the surgery. She is strong enough to kick her IVs and speaks clearly. Our God is an awesome God, He reigns!

November 27, 2011
Today is dad's birthday. He made me proud when he said that having Rosie still with us is the best present ever. I fully agree. It helps me realize that we can choose whether to feel blessed or feel cursed.  So why not try focusing on our blessings.

~ She's having MRI done this morning. Dr says she has 50/50 chance of getting a permanent shunt to help relieve intracranial (brain) pressure depending on how well her brain stem is able to drain properly. Dr. Dirks who was her surgeon and specializes in pediatric brain tumor treatment, is very happy with her current status.

~ Rosie's MRI shows brain is clear of tumour and bleeding. Thank you God.

~ We are blessed with the best neurosurgeon. Dr. Dirks
http://www.sickkids.ca/Research/Dirks-Lab/index.html

~ They had intubated her during MRI while she's under anaesthesia. Now they're waiting for her to wake-up and breath independently again. After 4 hours of close monitoring they will move her to another floor.

~ This is a similar scan from what she has pre surgery. The mass was 5cm x 6cm.

November 28, 2011

~ Please continue to pray for Rosemary. She still has many risk while her brain adjusts from her surgery. She is having headaches, irritability and eye muscle problems today. They said she could also have Posterior Fossa Syndrome which could affect her speech and motor function. Your prayers are deeply appreciated.

~ Rosemary had a good night sleep. She was already craving for milk, cheese, hotdog, and pizza. She tolerated drinking water so they will let her start eating solids today. the incision from her surgery is healing well too. Praise the Lord. thanks everyone.

November 29, 2011

~ Looking forward to seeing my boys tonight, I miss them. And they miss Rosie.

~She is much calmer today and less irritable, had her hair washed.

~Rosie wants hotdog now, anyone can fly some hotdogs to sick kids? lol


November 30, 2011

~ She wanted to feed herself oatmeal. Mom tried to help. She says 'mine.' So proud of her. She is my strength.

~She hates taking her liquid medications orally. Wish there was an easier way. At least she enjoyed her breakfast and sitting up from her bed.

~She finally got a chance just to relax after a busy day of meds, full bath, IV change and assessments. It was nice that she sat on my lap and cuddled after her bath. I wish I could do more. Thank you Lord for keeping her brave and strong.

For more information, see Highlight # 1 - Beginning of our Journey